Epidermolysis Bullosa facts
While investigating facts about Epidermolysis Bullosa Simplex and Epidermolysis Bullosa Acquisita, I found out little known, but curios details like:
About Jonny Kennedy, subject of the documentary The Boy Whose Skin Fell Off which documented the final months of his life as he suffered from dystrophic epidermolysis bullosa. Kennedy ultimately died of skin cancer caused by DEB. He died in his wheelchair while being filmed for the documentary.
how epidermolysis bullosa is inherited?
Epidermolysis Bullosa--a disease affecting a skin-binding protein-- can cause skin to fall off with the slightest touch. Children born with the disease are known as "Butterfly Children" because their skin is as fragile as a butterfly’s wings.
What causes epidermolysis bullosa?
In my opinion, it is useful to put together a list of the most interesting details from trusted sources that I've come across answering what is the life expectancy of a person with epidermolysis bullosa. Here are 4 of the best facts about Epidermolysis Bullosa Treatment and Epidermolysis Bullosa Pictures I managed to collect.
what's epidermolysis bullosa simplex?
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There's a boy in Canada with Epidermolysis bullosa (EB), one of the most painful conditions known to medicine. His body is ravaged. He's trying to raise money for others with EB and this article broke my heart.
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Epidermolysis Bullosa, a rare genetic disorder resulting in skin that is very fragile and easily broken or blistered, causing extreme pain
